On a cold October evening, my family and I prepared to celebrate Halloween, our house decorated festively with pumpkins and spooky ornaments. As we toasted the start of the holiday season, something felt amiss. Alcohol seemed to disagree with me, a sensation that continued through the holidays in 2021. This feeling persisted into November, manifesting as a gnawing discomfort in my chest.
Seeking answers, I initially consulted a doctor who expressed concern about my weight and suggested dietary changes, providing over-the-counter medication. Feeling dismissed, I returned a month later. This time, stronger medication and limited blood tests were suggested, but no significant issues were found.
I consulted a gastroenterologist, who prescribed medication, yet relief was elusive. Weight loss persisted, and dietary caution became a constant. By January 2022, while vacationing with my husband, a distinct lump emerged in my abdomen accompanied by severe back pain. This prompted an immediate return home to arrange an ultrasound.
The ultrasound detected a large mass in my pancreas. That evening, the doctor confirmed a substantial tumor in the pancreatic tail. Urgently seeking further evaluation, a CAT scan revealed a tumor compressing several organs. A subsequent biopsy left the doctor puzzled, until I suggested a neuroendocrine tumor, a possibility rooted in my mother’s history.
In February 2022, I was diagnosed with pancreatic neuroendocrine cancer with metastasis. This slow-growing cancer often remains undetected until late stages. Surgery in March removed the tumor, part of my pancreas, my spleen, and lymph nodes. Despite the operation, scans revealed cancer had spread to my bones and liver. Each year, about 8,000 people face neuroendocrine tumors starting in the gastrointestinal tract, a rare diagnosis I now shared with my mother.
Following grueling treatments, I endured severe side effects, including a stroke, temporary stability at the cost of my health. By fall, my prognosis was bleak; two to three years left. My daughter overheard this devastating news. Acknowledging limited time, I embarked on fulfilling my bucket list with loved ones, traveling extensively.
Recent travels included a memorable Alaska trip. Future plans feature a family cruise through Turkey, Greece, and Italy. Nonstop adventures include witnessing the Northern Lights in New Jersey—a serendipitous moment in our community.
Pancreatic neuroendocrine cancer, shared by public figures like Steve Jobs and Aretha Franklin, lacks awareness and funding. Understanding and supporting research remains vital due to the cancer’s genetic uncertainties. My fear for my children motivates me to advocate for awareness.
Life should be cherished in all its moments without needing a terminal diagnosis as a wake-up call. The briefness of life is emphasized by the impact of my mother’s early death. I strive to impart this to my children, encouraging them to explore this singular journey. Even with time uncertain, my goal is to inspire others and celebrate life passionately.
Jodi Bremner, 48, lives with her family in New Jersey. Together with her husband and four adult children, they pursue fulfilling experiences, driven to maximize every moment they have.